Saturday, July 23, 2016

Asymmetry






When cancer happens, doctors say things will move very quickly.  Doctors lie.  My first big appointment at the Cancer Center was June 23rd.  I met with my Breast Nurse Navigator, general surgeon, medical oncologist, and radiation oncologist.  They all assured me that I would definitely need surgery and radiation, maybe chemo.  I tried to talk my way out of radiation, to no avail.  My mastectomy was scheduled for July 6th, but my surgeon wanted a biopsy of one palpable lymph node.  That stupid lymph node was positive for cancer, so I had to have a PET scan.  We needed the results back before deciding if I would need chemo BEFORE surgery.  I received the call on Tuesday night that we would proceed with surgery Wednesday morning.  Although we had agreed on having both breasts reconstructed, my doctors decided that I should lose only Hot Cheeto Titty at this time, and worry about the other after treatment.  I still don't understand this rationale.  I just went with it.  They seemed to know what they were talking about.
I woke up Wednesday after surgery in PACU to my blood pressure being taken on my left arm (big no-no, never should I ever have a blood pressure taken on my left arm again....worsens the risk of lymphedema).  I felt good.  I checked out my bandage and my JP drain.  Not too shabby.  I spent one boring night in the hospital with very little pain. When my husband came to get me the next day, I had put on makeup and brushed my hair.  I put on the bra I wore into the hospital and stuffed my drain into the empty 36DD cup. We popped into the PICU to say hello to my co-workers on my way out.  I was a shiny, happy person.  On the way home, we stopped at my bff's restaurant and had lunch.    Everyone said I looked great.  I felt great!  

Once I got home, I took off the bandage and really looked at my incision.  Then I did the unthinkable. I stood in front of the mirror naked and looked at my one giant, saggy breast next to the sad, wrinkly place where HCT used to live.  My right breast seemed to be pointing further to the right, like she couldn't stand the hot mess that was now occupying my left chest.  I lost my mind.  I cried.  I wailed.  I threw a huge hissy fit.  My daughters laughed at me.  They thought I was being dramatic.  I was so emotional.  My husband used adhesive remover and gently scrubbed all the leftover tape from around my incision as I bawled like a small child.  
A week before surgery, I had been "fitted" for a special mastectomy camisole.  It comes with breast pillows to fill out the empty side, has inner velcro pockets for JP drains, and a front zipper. My insurance paid for two of these fancy shirts, but would not allow me to pick them up until the day of surgery. John went and got them while I was in the OR.  
I put on the camisole and cried even harder.  It was huge.  Ridiculous.  There was no way this cami was going under anything.  
I sent photos to my sisters of me next to the chic modelling the shirt.  THEY WERE PISSED!
Why does the model have 2 breasts? Who fitted me for this shirt?  Who can we bitch-slap for this mistake? Unfortunately, the store where we had "purchased" the cami is an hour away from our house.  John had already signed the insurance paperwork.  I felt defeated. I just took 2 Norco and wore the damn shirt to bed.
Now I am 2+ weeks post-op, and I have learned to deal with getting dressed.  Michigan is hotter than Hades right now, with humidity like a wet blanket.  I can't wear a real bra as my underarm area is still swollen and my JP drain exit is located there.  I bought some cheap sports bras that I can handle wearing for a bit.  I stuff batting into my velcro JP drain pocket that came with my cami and form it to match my remaining breast as best as I can.  I wear blousy shirts.  When I see people I know, they all look straight to my boobs.  The asymmetry continues to fuck with my psyche.  If I could go back, I would have had a double mastectomy from the start.  

Thursday, July 21, 2016

Here lies Hot Cheeto Titty

Sometime last summer, my dear husband and I returned home from a visit with friends at our favorite brewery.  I may have been tipsy.  Maybe even drunk-ish.  Either way, as I walked into the dining room, I snatched a half-empty bag of Flaming Hot Cheetos from my 13-year-old boy and went to town.  My 11-year-old daughter proceeded to mess with her mama.  (she is not a hot cheeto eater).  We were talking trash, and she started laughing and pointing at my shirt where a Flaming Hot Cheeto had missed my mouth and landed on my left breast.  Being the smartass that she is, she decided that my new name would be "Hot Cheeto Titty".  She knows how I abhor the word "titty".  
Fast forward to a week later, I asked Siri a question on my iPhone, and he responded in his sexy Australian accent, "Sorry, Hot Cheeto Titty, I don't understand the question".  The name stuck.  (only within my family and friends closest enough to not openly freak out about my parenting style). 

Later on that summer, my mom was diagnosed with Acute Myelocytic Leukemia.  I left my family for ten days with sister number 5 to join our baby sister in Seattle to see my mom through her first bit of chemo.  It was an emotionally exhausting trip, and I was beyond ready to be home.  I literally ran out of the airport, only to find my bff and my 19-year-old daughter with poster-board signs that read "WELCOME HOME, HOT CHEETO TITTY!!!"  Of course, youngest daughter had followed suit.  I had signs on my fridge when I arrived to my house.  They are the best.  Ever.  

My husband and I celebrated 15 years of marriage this past April.  Being the sweet and thoughtful wife that I am, I booked us a room at a fancy hotel and told him to meet me there after his shift at the hospital.  I even scored a free upgrade to a jacuzzi suite.  As I was getting ready for our hot date, I noticed the nipple on my left breast (who shall now be called Hot Cheeto Titty or HCT) was kind of pulling in?  It would come out if touched, but it looked flat from the front view.  Odd.  Maybe I'm getting old lady boobs.  

A few weeks later as I was getting in the shower, HCT was back at it with that weird nipple thing.  I raised my arms in front of the mirror.  HCT moved up and the nipple really pulled in.  Right boob did nothing.  Just laid there, bored.  I did a self-breast exam and found 2 lumps in HCT.  One big and squishy, one small and hard.  Immediately called gynecologist.  Appointment made for a week later.  Finally told husband my concern.  He confirmed 2 lumps.  Wait and see what doctor says.  Doctor said nothing really.  Scheduled mammogram and ultrasound.  Mammogram was no big deal.  Ultrasound not so bad.  Until sonographer left the room and brought in radiologist.  That guy came over to me and held my hand.  BAD SIGN.  He said what I already knew.  Cancer.  Shit's gonna move really fast from here.  Get ready.

It's now the end of July.  I lost Hot Cheeto Titty (may she rest in peace) on July 6th.  I had a left mastectomy.  The tumor was 4.5 cm and five lymph nodes were positive.  Invasive Ductal Carcinoma stage IIIA.  I still have a fecking JP drain after 2 weeks. I will see my oncologist on Monday to discuss the plan for chemotherapy.  Getting a port placed next Wednesday.  I know that I will have several months of chemo, followed by six weeks of radiation.  When all is said and done, I will have both breasts reconstructed.  Blah.  I hate you, cancer. You are a dick.